Imagine being 16 weeks pregnant at your ultrasound appointment and seeing a panicked technician rushing out of the exam room in the middle of the scan. I found myself sitting on the exam table wondering what was happening. The doctor comes in and takes the ultrasound wand and starts looking at the baby on the monitor. At that moment I told myself before the doctor could, something is wrong with the baby. I really did not need the details, I know something was wrong. I could not stop the details from flowing. They flowed from doctors, surgeons, specialists, and nurses from that point forward. The doctor said, "your baby has HLHS, Hypoplastic Left Heart Syndrome". At this point, my brain and body went into "research mode". Researching hospitals that could help us, cardiac surgeons, transplant options and so much more.
This is where Sisters by Heart comes in. A resource that can take an unimaginable situation with enormous stress and delivers tools and resources to families specifically for families dealing with HLHS diagnosis and other singular ventricle defects.
Now I was not able to use their services in 2010 when we were going through our journey with Baby Miles... but years after I discovered them and have been able to connect many mothers and families to Sisters by Heart. With having and losing a child to HLHS, I am connected to many people suffering and in need of help and one of my go-to resources is Sisters by Heart to this very day.
Our son, Miles was born 10-4-2010 and left us on 2-16-2011. He lived for 4 months and did more in his little 4 months than many of us in a lifetime. I am so grateful that Sisters by Heart was born and created for families that truly need so much assistance, navigation, and education on what comes next. Without an organization like them, families are lost in a massive land of "figure it out on your own" and it can be debilitating. So THANK YOU Emotional Support Threads for choosing an organization that is truly doing magnificent humanity work.